Dying Matters 2019: Are We Ready?

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Dying Matters Awareness Week takes place between 13 – 19 May and encourages people to think about dying.

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 The CCG wants everyone to start talking about dying! Not a statement you would expect from the local NHS, but as part of Dying Matters Week (13 -19 May), we want to encourage people to talk about preparing for end of life so that we can all be ready.

This year’s Dying Matters theme is “Are We Ready?” which can be interpreted in many different ways. There are the practical questions like funeral planning and cost but also emotional and spiritual questions.

Such questions are best faced with the help of others and that’s why it is so important for us to be willing to talk about dying. For this Dying Matters Week, NHS Thurrock CCG will be working with St Luke’s Hospice to encourage people to think about what they would need to do to make having the conversation about dying easier. We will be supporting events at a number of locations across Thurrock, run by St Luke’s Hospice, so feel free to come along and have a chat! See the times and locations below:

Tuesday 14 May
Costa Coffee, Western Avenue, Lakeside Retail Park RM20 3LP near TKMAXX from 10am to 2pm
St Margaret’s Church, The Green, Stanford le Hope, SS17 0EP – a talk on Dying Matters from 10am to 12pm

Wednesday 15 May
St John’s Church, Corringham, SS17 8WU – talk on what you can do to prepare from 1pm to 3pm

You can find out more about the Dying Matters Awareness Week on the Dying Matters website

Advice for people with diabetes fasting for Ramadan

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Ramadan, the ninth month in the Islamic calendar, is when Muslims devote themselves to their faith and fast from sunrise to sunset. Ramadan started on Sunday 05 May lasting until Tuesday 04 June and is obligatory for almost all Muslims.

Although certain groups are exempt for health and other reasons, some people with diabetes are keen to observe the fast, although the long daylight hours in the UK at this time of the year makes it a challenging time, even for those without medical conditions.

People living with diabetes who fast are at an increased risk of experiencing high and low blood glucose levels during Ramadan. People also need to be aware that there are changes to the body when fasting, so they may need to change when and how they take any medication that they rely on; so you are encouraged to speak to your community pharmacist for individual advice.

Personal Wheelchair Budgets

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Find out more about Personal Wheelchair Budgets (PWB) and what they can mean for you.

As part of national NHS plans for the wider expansion of personal health budgets, NHS Mid Essex, Thurrock and Basildon and Brentwood CCGs have developed a local personal wheelchair budget (PWB) agreement to replace the current wheelchair voucher system. A personal wheelchair budget is a resource available to increase people’s choice and control of wheelchair provision, either within NHS commissioned services or outside of NHS commissioned services. You are able to use this when your wheelchair is due to be changed, either every 5 years or less if your medical need has changed.

Breck's Last Game - major new grooming awareness project launches

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Essex Police launched a YouTube video to support all agencies in helping children and young people to recognise forms of online grooming. 

A major new project aimed at helping to protect boys from online grooming has been launched in Essex.

Breck’s Last Game is a film based on the real-life murder of 14 year-old Breck Bednar in Grays in February 2014 by Lewis Daynes.

The film, which will be rolled out in secondary schools across the county, highlights the risks of grooming to teenage boys and asks the question ‘Do you know who your online friends really are?’

Daynes ran an online server where Breck, and several of his friends, played games online and it was through this forum that Daynes groomed Breck over 13 months – telling him a series of lies, turning him against family and friends, and eventually luring him to his flat on the promise of handing over a fake business.

Through the use of avatars, the film captures the events leading up to Breck’s death and also features the real 999 call made to police by Daynes.

The project is the work of an innovative collaboration between four police forces – Leicestershire, Northamptonshire, Essex and Surrey – and has been made with the active support of Breck’s mother Lorin LaFave, who appears in the film as herself.

If you are worried about your child or children you work with please visit our Safeguarding Children page for advice on where to report your concerns to. http://www.thurrockccg.nhs.uk/your-health/safeguarding-children


Freestyle Libre on prescription

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Freestyle Libre, the glucose monitoring system, is to be made available to some Type 1 Diabetes patients across Mid and South Essex.

In March 2019, NHS England issued national guidance for funding of Flash Glucose Monitoring (using a sensor on the upper arm rather than finger prick test) for relevant diabetes patients. As a result, the NHS in mid and south Essex has reviewed local policy. If you are already under the care of the specialist diabetes team, they will discuss your eligibility at your next routine review.

If you meet the criteria you will receive FreeStyle Libre® funded by the NHS. If you are not under the care of the diabetes specialist team but you clearly meet those strict criteria, you will need to ask to be referred to the specialist team for assessment, and you will be seen at the next available routine appointment.

Patients who want to use (or continue using) FreeStyle Libre® but who do not meet the criteria for an NHS-funded system can buy it directly from the manufacturer by visiting www.FreeStylelibre.co.uk/libre/ or telephoning 0800 170 1177.

More information is provided in Frequently Asked Questions.